I left Facebook a while ago because I kept getting sucked into the arguments between parents and Autistic people, Autistic people and the anti-VAX movement, and medical professionals and Autistic people. Today I logged back in and was quickly reminded why I left.
The first thing thing that upsets me is that all of these people think they know more about Autism than Autistic people, as if our first hand experiences are of little or no value. This is often parents but can also be medical professionals and organic health nuts (I eat organic but these people are extreme).
Cure culture fanatics telling us we are sick for wanting to stay Autistic – sick for wanting to stay the way we were born. Parents telling us we don’t understand because we are not like their child (some of us WERE at one point and have worked hard to improve as we grew up). Doctors telling us our claims don’t make sense to them , dismissing our complaints.
Next I am saddened for the children who’s parents are always telling everyone what a burden their child is. Many non verbal children can understand spoken language and may be able to read some day. Putting comments like this on the internet publicly doesn’t feel right to me. Telling everyone your child is broken doesn’t seem like loving acceptance either.
Brain damage and Autism do have similar traits but even if you have a brain damaged child – shouldn’t you love them? I am not a parent. All I know is how I would feel if my parents said those things about me.
If someone always talks about you with pity you will eventually begin to pity yourself. From a mental health standpoint this can cause a LOT of problems. Autistic people seem have more health problems and anxiety when they have low self-esteem.
There are a lot of unknowns with Autism. It seems there may be many contributing factors but my money is on genetics for most cases. Human brains are changing at a rapid rate, trying to keep up with the quickly changing world around us.
My brain is at ease with nature in the fresh air. The artificial world is unpleasant to me. Is this something primitive left over in my genetics, or am I a canary in the coal mine? Science may tell us some day.
Most upsetting are the people who want to cure and prevent Autism. I fear this could be a big problem for humanity if they succeed. All of the different brain types and thinkers make the world a better, more progressive, and interesting place.
I hate that this issue is tearing people apart. People get so heated and angry when someone disagrees with them on this topic, they say nasty things with little regard for the other person. It is nasty it is ugly and we really need to stop.
Stop telling Autistic people they are unwanted by society. That is what you are telling us when you say you want a cure for Autism or want to prevent Autistic people from being born. You are saying that being dead is better than being Autistic and I disagree.
I know you can’t reason with or speak to these people. They are close minded and the frustration, like Facebook, is a waste of my time – so I log back off and return to a happier place (my own blog).
The day this went live on Twitter someone took offense to my blog. Its crazy. You can not please everyone and my OCD would make sure I NEVER hit publish if I tried.