Tag Archives: mental health

Misunderstandings

So many misunderstandings.

People read too much into meaningless things.

If I don’t look at you when you speak

you assume I’m not listening.

When my body language

doesn’t do what you’d expect

or when I laugh in the wrong moment.

If I say something using the wrong tone

you may think I’m rude.

If I cannot speak

I must be hiding something.

Over and over,

we confuse each other.

When I take something you say literally,

or my brain skips hearing words as you say them.

Sometimes I need time to process.

If I don’t get it

we’ll both stay confused.

Sometimes I can’t explain myself.

Please trust me.

Sometimes I process things on a delay.

Maybe we can talk about it another day – maybe not.

I’m not ignoring you or trying to

leave you hanging.

If I look confused, I probably am.

Give me time to figure things out on my own.

Don’t treat me like a child.

It’s only

a misunderstanding.

A poem about Autism and misunderstandings. Being Autistic sometimes feels like nobody understands you. Other times you know instantly that some misunderstanding has occurred.

Autistic Confessions – I Just Want to Be Alone – The Stigma of Solitude

I love being alone. In fact, like most introverts, I need to be alone in order to recharge my batteries.

The difference between me and most introverts is that they still “need” or “crave” social activities and being around other people. I simply don’t and never have.

Always alone, when I was young and through my teen years (and even part of my adult-hood) people made me feel like my tendency towards solitude was pathological. I remember my parents and grandparents trying to force me to go out with friends / leave the house.

They forced e so hard, insisting that I make friends or be lonely, but I had almost no friends.

I’ve always had a pattern of only having one friend at a time and hanging out in groups has never been fun for me. Having more than one or two friends is still very difficult for me.

Your whole life people tell you you will be lonely if you don’t have friends but I feel most alone when I am around the wrong people or even worse too many people. I never feel alone when I am on my own working on something I am passionate about.

To be perfectly honest sometimes I feel more affection towards my projects than for most people. I am very task driven and calculated. People often take my seriousness for coldness. The few who know me well know me as funny and warm.

One on one interactions are great if they are with the right person.  I can even do groups of up to three people if I keep the interactions short. More people needs to equal a shorter interaction for me.

Also, I am not opposed to meaningful conversations. The minute people start talking about pop culture and other mindless garbage my mind wanders. I am off in my own head until something brings me back to reality.

Neurotypicals or “normal people” take for granted things that are a LOT of work for me. Simple things, like figuring out when it’s your turn to talk. Despite focusing almost ALL my brain power on timing in conversations STILL I manage to mess this up every time.

Even when I am having a great time being social, my brain wears down fast when I have to focus on conversations. It is real work for me. The more conversations and the more people at a gathering the faster I drain out.

I’ve heard the clever term social hangover. For me this is a very accurate description.

By the time I am done with a 2 hour hangout with 4 people I am feeling dead and drained. It takes me a full day to recover from most social interactions. Add more people or more hours and I need even more time to recharge.

I can only handle one or two of these a month or I start to have an increased frequency of indigestion and meltdowns.

When my job started having one or two social things a month I stopped hanging out with the few friends I had. The truth is now all my social energy is spent on coworkers who I don’t relate to – because I am trying my hardest to “play the game.”

I turn down as many office happy hours as I can, but still feel like I don’t attend as many as they want me to.

Social politics in the work place are hard on us Aspies but we can’t escape them. If we want to succeed in an office we have to learn the patterns and unspoken rules (I hate unspoken rules – I like CLEAR rules).

If we can’t figure out the mysteries of the office we have to make our own way somehow or risk being stuck in a career that doesn’t fulfill. We are often under paid and under appreciated in the work place because we don’t kiss ass and “play the games” that our neurotypical peers do.

Without these skills we are at a disadvantage. There is pressure to fit in.

My hyper-social coworkers who like to go out several nights a week think being out and social is normal but for me a night at home is more acceptable. I am “antisocial” a “recluse” “book worm” and “introvert”. So many titles.

Why does wanting to stay in even need a title? Why does society shun the loner? There is nothing wrong with me wanting to spend most of my time alone. If I am truly happy what is the problem?

Its time we break the stigma on solitude.

 

#ActuallyAutistic #SheCantBeAutistic #AnonymouslyAutistic #InvisibleAutism

My Meltdown – A Poem – Guest Blog

This poem comes from a long term reader, fellow blogger, and dear friend. I am honored to share with you a work by the one and only Allison M. Kramer of the Through 1 Filter  blog.

Thank you for sharing such an intimate moment. People need to understand meltdowns. These conversations are important.

 

My meltdown is

Echoed in my screaming
Adrenaline is racing like napalm through my veins
Moro reflex punching my gut over and over
Reliving the sensory overload on a loop

I’m drowning without being in water
and I have to go to bed for 2 days

Sometimes it brings red and blue flashing lights on a squad car 
Handcuffs chewing into my wrists
Lots of shouting and grabbing
Strapped to a backboard while my skin turns purple and black

Locked up, drugged up
Being punished for something I cannot control
It isn’t a conscience choice I’ve made
To disrupt my life or yours

It so happened that
A dog was barking-
A child was screaming-
Someone set off a firecracker-
And I couldn’t process the information fast enough
To remain in control of my executive functioning

The threat of sensory overload
hangs pregnant, like a cumulonimbus cloud

I need a safe place and safe people- now and until I die
To successfully process what life heaps upon me

Will you help me to make this a reality? I cannot do it alone, behind a computer detached from any notion of community. I don’t want my life story to end in a jail cell, nursing home or alley. 

 

Allison M. Kramer
Author:Through 1 Filter

 

 

Letter to My Younger Self

Dear Me, so bright eyed and bushy tailed.

Wild child, who can’t sit still, full of joy bouncing off the walls. Yes you are strange, but please don’t fear your uniqueness. Be you, don’t grow bitter.Stay strange and amazing.

You have so much potential. Yes, your mother is right you are smart. Stop believing when people tell you otherwise.

It’s okay that you don’t need people. That makes you independent NOT defective. You are not cold and robotic you are calm and logical. Yes you do things differently but some day this will be your strength.

The people who picked on you never made it far in life. It was them not you who had the problem. Bullies are insecure and often suffer on the inside, lashing out to make themselves feel bigger. Don’t be like them. Stay kind.

Silly girl, who talks to the animals and trees. Never stop. Don’t worry about what other people think of you. You are perfect just the way you are.

 

With deepest love,

-Me

Taking The Easy Route – A Poem About Invisible Illness

How dare you say I’m taking the easy route

When you have no idea what I’m going through

You tell me I’m not trying

But this is all I’ve got

Sometimes just doing normal things

Takes up all my energy

There are days when normal life experiences

Make me physically ill

Work a little harder you say

I keep pushing

Pushing myself to exhaustion

Just trying to keep up

You’re not stupid – you say

Trying to pay me a compliment

Look it’s not that hard

This is all you do

But for me it is difficult

You make these things look easy

and can’t understand why I can’t

So you say I’m taking the easy way

Because life’s so hard I will take a break

Where I can get one

Always looking for the easy way out

Poems about Autism & Invisible Illness. These are the one sided conversations in my head. Things I never say face to face – because most things process on a delay. In the moment I often know I am upset but not exactly why. It is frustrating.

#ActuallyAutistic #SheCantBeAutistic #InvisibleAustim #AnonymouslyAutistic

The Secret to Fighting Anxiety (Now!)

Life is hard and I have pretty intense chronic anxiety. Still I don’t let that stop me from doing what needs to be done.

It’s funny to me when people praise me, call me strong, brave, and all these other names. I’m literally just doing what I have to do. I have to push myself or my life would be in a bad place. Always pushing even when my anxiety is nagging ugly words in the back of my mind.

So what is the secret? How do I stop the anxiety from talking over?

I stop and I breathe. I close my eyes and breathe while focusing on the darkness. I may put ear plugs in or have head phones on while I do this. I block everything out and am alone with myself.

Safe in the darkness I ask myself – are you safe? What is happening right now? Is your worry something that hasn’t even happened yet? Then stop it. What’s happening now? 

I push forward but keep asking – What’s happening now? How about now? Now? Now? Now? Right now.

Sometimes I may repeat the word now over and over again in my head. It is a reminder to stay calm and that now everything is alright.

 

Passing – Blending in For Survival – The Masks We Wear

I grew up undiagnosed so I learned to sit still and when to be quiet. I keep all speech and movements carefully planned like I am in a play. It’s an act I put on – hiding my Autism as a survival mechanism that I developed due to not knowing why I was different. It wasn’t that I was ashamed – although as I grew older bullies forced be to hide for my own safety.

At home with my parents and family all of my differences seemed normal and I was so “smart” that nothing could possible be said about anything else.

I’ve said before that Autism runs in families, even if some families never notice it. My family is pretty quirky, despite my Autism being obvious, at home blending in was easy.

When I was very little I had a very had time regulating and maintaining and indoor voice, my balance was not great, and as a toddler I preferred spinning objects over people.

In old videos of me adults are unable to get me to look away from my things when they call my name. I can hear – because in one clip a phone rings and the bell startles me to look about but I tune out all the humans begging for my attention.

As I grew older I had to go to school and my differences became more obvious to those outside of the home. In preschool I often asked for teachers to hug me – because I was anxious and craved the release of the squeezing pressure. Teachers thought it was strange that I ask people who were not family for hugs.

Everyone was nice to me up until about the first grade. It was then that I met my first bully – a strict old fashioned southern school teacher. I remember that she wanted me to sit still and tried to make me speak in front of the class. She didn’t give hugs and she wanted me, the disruption, out of her classroom.

I remember sitting on the floor in the hallway as my mother spoke to the adults inside the office. The conversation is not in my mind but I remember my mother being very angry when we left. Afterwords I remember her telling people “that child is not stupid”.

It was agreed that I would spend part of my day in a special education classroom.

Being labeled a special-ed kid brought about a whole new type of bully – other children. People who had always ignored me in the past now made efforts to scream names at me in the hallways. The children were mean and the adults had an attitude as if being picked on was just a part of life.

In my mind all of my troubles were linked to being in the special education class-room so I worked hard to get out of there. Unfortunately by the time I escaped the SPED room the damage was done. Names like “Retard” and “Short Buss” followed me until I moved to a new city years later.

All because I was shy and had a hard time sitting still. One teacher who didn’t want to deal with me caused so much trouble and pain.

I thought things would be better in my new school. Finally I was invisible again. Unfortunately I still ended up having several altercations with bullies over misunderstandings. Despite proving my intellect, my social skills were still very limited and they often got me into trouble.

We moved one more time before high school, this time after being in a play. I remember thinking – acting is so easy it’s what I do every day when I am around other people. I made a conscious effort to pick and create a character of myself for my new school – one who does not get bullied.

I studied and watched movies and real people. I taught myself to “wear a mask” in school and eventually at work. The character. She comes out whenever I need her but takes up a lot of my mental energy.

Passing is a survival mechanism. As an adult you are asked to do more and more things that require a “social mask”. If you don’t learn do adapt one life on your own can be difficult – unless you find people who are understanding of your differences.

Wearing the mask too often can lead to Autistic Burnout.

Unfortunately we live in a society that can be unkind to what it doesn’t understand. Social skills are valued and necessary but many Aspies, myself included, have a hard time with even the basics (such as timing in conversation).

We have misunderstandings and miscommunications. People think we are rude because they do not understand that these things are not natural to us. Even worse they are often upset when we get things wrong.

It is difficult for us to hold a job or make advancements in the workplace because we do not value social acceptance or do well with office politics. I personally understand them in a very mechanical way but try to keep my head down and let my work speak for itself.

As an adult blending in means happy hours and group outings to the new trendy spot in town – things that I can’t even pretend to enjoy. I am learning that blending in is no longer enjoyable, turning down all invitations to hang out with co-workers and sometimes friends.

Work socials are the worst for me. Any group larger than three people is not enjoyable, although I can push it to a group of four without losing my mind. Too many conversations at one time or in a loud space can lead to sensory overload and will send me home feeling like a zombie desperate for a hot bath and feeling empty.

The pressure to be “professional” is intense even in a relaxed setting. How do you do professional and relaxed at the same time? I don’t have that character in my Rolodex. This does not compute.

I’ve dreamed of a day when I will drop all of the masks completely however I realize most people, especially those in sales, have some sort of character they play. I don’t want to play a role, I want to be myself.

#ActuallyAutistic #SheCantBeAutistic #InvisibleAutism #AnonymouslyAutistic

All the world’s a stage
And all the men and women merely players
They have their exits and their entrances
And one man in his time plays many parts

- William Shakespeare, 1564 - 1616

Don’t Make Me Speak – A Poem

Don’t make me speak

When I’m not ready

Sometimes the words won’t come out

From time to time my mind goes blank

Even more frustrating are silent times

Where I am screaming on the inside

But my mouth will not move

If I try to force the words

I may be lucky to get something out

Although these forced phrases

Are never what I hope they will be

Everything inside me is pounding

As I try to find something to say

The more I try to speak

The further away my words slip

Eventually I may storm off

Or begin to cry

It is painful and disorienting

When I try to force them

There is a panic

If I try to push through

When I don’t accept

What is happening to me

Please don’t mistake my silence for disrespect

Don’t make me speak

Give me time and patience

When I am kind to myself

Eventually the words return on their own

A poem about not being able to speak and anxiety.

Diagnostic Criteria for Neurotypical Spectrum Disorder

Are you or is someone you know hyper social? It could be Neurotypical Spectrum Disorder.Read below to find out more and follow #NTDiagnosis

Neurotypical Spectrum Disorder           999.00 (F97.0)

Diagnostic Criteria

A.      Persistent over-activity in social communication and social interaction across multiple contexts.

1.       Insistence on social-emotional reciprocity, ranging, for example, from constant social approach and early adaptation of back-and-forth conversation; to encourage sharing of interests, emotions, or affect; to a constant seeking to initiate or respond in social interactions.

2.       Over awareness of nonverbal communicative behaviors used for social interaction, ranging, for example, from integrated verbal and nonverbal communication; to eye contact and body language or overestimation in understanding and use of gestures.

3.       Early onset in developing, maintaining, and understanding relationships, ranging, for example, from ease adjusting behavior to suit various social contexts; may engage in sharing imaginative play, easily make friends without assistance. Also may show an over interest in peers.

Specify current severity:

Severity is based on social communication impairments and restricted repetitive patterns of behavior (see Table 2).

B.      Enjoys a wide range of interests, or activities, with a difficulty focusing on one task through completion, as manifested by at least two of the following, currently or by history (examples are illustrative, not exhaustive; see text):

1.       Lack of repetitive motor movements, use of objects, or speech (e.g., simple motor stereotypies, lining up toys or flipping objects, echolalia, idiosyncratic phrases).

2.       Insistence on variance and flexibility, dislike of routines, or ritualized patterns or verbal nonverbal behavior (e.g., no distress at small changes, ease with transitions, lose thinking patterns, aversion to rituals, need to take new route or eat different food every day).

3.       Highly flexible, fluid interests that are abnormal in intensity or focus (e.g, weak attachment to or preoccupation with others and socializing).

4.       Hyporeactivity to sensory input or lack of interests in sensory aspects of the environment (e.g., apparent indifference to pain/temperature, indifferent response to nature, specific sounds or textures, lack of interest in smelling or touching of objects, shows no visual fascination with lights or movement).

Specify current severity:

Severity is based excursiveness of of social communication and fluid, overly flexible patterns of behavior (see Table 2).

C.      Symptoms must be present in the early developmental period (but may not become fully manifest until demands exceed limited capacities, or may be masked by learned strategies in later life).

D.      Symptoms cause clinically significant impairment in social, occupational, or other important areas of current functioning.

E.       These disturbances are not better explained by other disabilities or illnesses.

Note: Individuals with a well-established DSM-VIII diagnosis of Communitive disorder, Socialem’s disorder, or other hyper-social disorder not otherwise specified should be given the diagnosis of Neurotypical spectrum disorder.

 

 

How would an Aspie diagnose a “Neurotypical” person if the tables were turned. Just for fun. I hope this peace bring thoughts and a smile. It is not intended to be offensive in any way.

With Love,

“Anna”

I Want to Encourage Everyone to Write

Writing is therapy and can be a key to better self understanding. We all have stories to tell and lessons learned. When we share we give others the opportunity to learn.

Write – even if you never share your world with anyone.

Pour your soul out onto the pages (digital or hand written). Let your thoughts come to life. Often I am surprised at what comes out when I am behind a keyboard. There is a flow when I am comfortable and relaxed.

In face to face interactions I am not nearly as eloquent. Sometimes I am just struggling to keep pace with a conversation – my brain tends to save information to process later. This is inefficient when speaking to people. By the time I am ready to contribute often the topic has already been changed.

My social differences are often misunderstood by my peers. I don’t need to look at people when they are talking to me – and listen best if I don’t try to. People often think I am rude, daydreaming, or not paying attention. They don’t understand that my brain works differently.

I started this blog out of frustration. When everywhere I go everyone misunderstands or underestimates me. If I tell people I am Autistic they say things like “you seem to have grown out of it” or “you don’t seem autistic”.

The picture they have of Autism is one that was sold in movies and on the internet.

It is a boy who cannot speak, an adult who may never live on their own, or someone who bangs their head against walls (I do this but not hard enough to hurt much).

An attractive woman who appears to have it all together is NOT what they imagine when you say “Autism” and they can’t easily adjust the pictures in their minds.

Neurotypicals tend to have more of a “hive mind” than Aspies do. They tend to follow popular opinions and are often hesitant to stray from what is considered “common knowledge”.

I can only see one fix for this problem – change what is “common knowledge”.

Aspies are wired to be individuals we don’t care about what others think – unless we are taught to care what others think (then we can become overly eager to please). We tend to be very analytical – sometime to the point of over analyzing.

Many of us thrive in solitude and are often accused of being “antisocial” and other negative terms.

People have a hard time accepting what they don’t understand. That is why it is so important that we all share our stories. Everyone has a story to tell.

Do something with yours – even if it is all you’ve got. Maybe you will change the world.

 

#SheCantBeAutistic #ActuallyAutistic #AnonymouslyAutistic #InvisibleAutism