Tag Archives: Poetry

Don’t Domesticate Me

I don’t want to be domesticated.

Chained to a home and a mortgage.

Having a job is a necessary evil,

although I am painfully aware

many WISH for the chance to work.

The endless cycle.

Work.

Work to pay for the house.

Work to pay for the things.

The house you cant enjoy

and the tings you don’t really need.

Spend all your time working.

Living just to work.

Careers don’t suit me.

I walk to my own beat.

Walking alone, quiet, with nature.

Walking for hours by the stream.

Someplace comfortable and calm

Maybe one day there will be time.

When I no longer have to work.

Meltdowns – Banging My Head Against the Wall

It’s hard to write about meltdowns, they are very difficult to describe. The most frustrating part of having one is the fact that I have very little control over it. In fact while I am having a meltdown it feels as if I have lost control of everything.

I become very much like a child having a tantrum, but the reality is at that point I can no longer think clearly so my cognitive abilities may not be far above that of a child as the episode comes on. I am completely overwhelmed by everything.

Many of my meltdowns are tied to anxiety.

I don’t often bang my head against walls but if I do, it is because I am in a very dark place, sick, or in pain. This is a last resort scenario, when something is too much and I just “need it to stop”.

Not encouraging this behavior just trying to shed some light on something that doesn’t get enough discussion.

Every time I have a meltdown I write a poem. Here is one I wrote a while ago.

Banging My Head Against the Wall

The worst of meltdowns.

Trapped with my own anxiety and sense of dread

swirling endlessly inside my head.

I can’t escape.

Please make it stop.

Curled up rocking my back to the wall

tears and eyeliner pouring down my face.

Stop! Stop! The panic continues

while I bang my head up

against the wall.

It’s gotten to that point

where everything falls apart.

You think I am overreacting to something small

but this is the result of holding things in

 hours, weeks, even months.

It’s always the same.

I reach my limit.

Eventually that one thing happens

and everything just becomes too much for me.

The weight I’ve been carrying comes crashing down hard.

Desperate, panicked, and alone, I am stuck beneath it.

“Get a hold of yourself! You are acting like a child!”

The words don’t help because I can’t

make it stop.

I would if I could

but this has to run it’s course.

Once the meltdown starts it overtakes me.

All I can do is run, make irrational choices, and cry.

When a meltdown hits I am lost and tormented.

You may be here with me but I am alone

and feeling helpless

drowning.

Overwhelmed Meltdown to Burn Out – A Poem – Guest Blog

A stone in my throat
Left and right brains beat swiftly
Needles prick my nerves
Tingling nerves in whole teeth
Mind blank out
Numbness envelope whole head
Tears well up turning to
Uncontrollable tears draining my face
Dripping down my chin
Unintentional wrong
Lead into drown into the abyss of sea
Struggling to swim up
Heavy stone body pushing me deeper
As my hand lifting upwards
During daytime
Sudden loss of energy at my hands
Palms lose strength to grip
Noises
Every light footsteps
Pulling of chairs
Shouts
High pitched voices
Distract my focus
Messages
Apps
Notification tones
Breaks my concentration to pieces
Awakened from sleep
Heartbeat rhythms pounding faster
Pulling nerves at my rear skull
Tingling nerves and pulling backwards
In the temple of my head
Explosive pressure in the top of my head
Either in my half-right head
Or in my half-right head
At times squeezing my whole head
As sense of burning in my head
Perspiring in the cold room
Pulsating head temples spreading in whole head
Gasping for breathe
Calling out to Jesus for help
Looking to my Lord for His healing
Crying to Him from inside
– Yoshiko (Diagnosed at age 34)
Please check out Yoshiko’s blog for more great content.

Misunderstandings

So many misunderstandings.

People read too much into meaningless things.

If I don’t look at you when you speak

you assume I’m not listening.

When my body language

doesn’t do what you’d expect

or when I laugh in the wrong moment.

If I say something using the wrong tone

you may think I’m rude.

If I cannot speak

I must be hiding something.

Over and over,

we confuse each other.

When I take something you say literally,

or my brain skips hearing words as you say them.

Sometimes I need time to process.

If I don’t get it

we’ll both stay confused.

Sometimes I can’t explain myself.

Please trust me.

Sometimes I process things on a delay.

Maybe we can talk about it another day – maybe not.

I’m not ignoring you or trying to

leave you hanging.

If I look confused, I probably am.

Give me time to figure things out on my own.

Don’t treat me like a child.

It’s only

a misunderstanding.

A poem about Autism and misunderstandings. Being Autistic sometimes feels like nobody understands you. Other times you know instantly that some misunderstanding has occurred.

My Meltdown – A Poem – Guest Blog

This poem comes from a long term reader, fellow blogger, and dear friend. I am honored to share with you a work by the one and only Allison M. Kramer of the Through 1 Filter  blog.

Thank you for sharing such an intimate moment. People need to understand meltdowns. These conversations are important.

 

My meltdown is

Echoed in my screaming
Adrenaline is racing like napalm through my veins
Moro reflex punching my gut over and over
Reliving the sensory overload on a loop

I’m drowning without being in water
and I have to go to bed for 2 days

Sometimes it brings red and blue flashing lights on a squad car 
Handcuffs chewing into my wrists
Lots of shouting and grabbing
Strapped to a backboard while my skin turns purple and black

Locked up, drugged up
Being punished for something I cannot control
It isn’t a conscience choice I’ve made
To disrupt my life or yours

It so happened that
A dog was barking-
A child was screaming-
Someone set off a firecracker-
And I couldn’t process the information fast enough
To remain in control of my executive functioning

The threat of sensory overload
hangs pregnant, like a cumulonimbus cloud

I need a safe place and safe people- now and until I die
To successfully process what life heaps upon me

Will you help me to make this a reality? I cannot do it alone, behind a computer detached from any notion of community. I don’t want my life story to end in a jail cell, nursing home or alley. 

 

Allison M. Kramer
Author:Through 1 Filter

 

 

Taking The Easy Route – A Poem About Invisible Illness

How dare you say I’m taking the easy route

When you have no idea what I’m going through

You tell me I’m not trying

But this is all I’ve got

Sometimes just doing normal things

Takes up all my energy

There are days when normal life experiences

Make me physically ill

Work a little harder you say

I keep pushing

Pushing myself to exhaustion

Just trying to keep up

You’re not stupid – you say

Trying to pay me a compliment

Look it’s not that hard

This is all you do

But for me it is difficult

You make these things look easy

and can’t understand why I can’t

So you say I’m taking the easy way

Because life’s so hard I will take a break

Where I can get one

Always looking for the easy way out

Poems about Autism & Invisible Illness. These are the one sided conversations in my head. Things I never say face to face – because most things process on a delay. In the moment I often know I am upset but not exactly why. It is frustrating.

#ActuallyAutistic #SheCantBeAutistic #InvisibleAustim #AnonymouslyAutistic

Don’t Make Me Speak – A Poem

Don’t make me speak

When I’m not ready

Sometimes the words won’t come out

From time to time my mind goes blank

Even more frustrating are silent times

Where I am screaming on the inside

But my mouth will not move

If I try to force the words

I may be lucky to get something out

Although these forced phrases

Are never what I hope they will be

Everything inside me is pounding

As I try to find something to say

The more I try to speak

The further away my words slip

Eventually I may storm off

Or begin to cry

It is painful and disorienting

When I try to force them

There is a panic

If I try to push through

When I don’t accept

What is happening to me

Please don’t mistake my silence for disrespect

Don’t make me speak

Give me time and patience

When I am kind to myself

Eventually the words return on their own

A poem about not being able to speak and anxiety.

The Meltdown

Sometimes it creeps on slowly

I see it coming hours in advance

Other days it hits me like a freight train

I feel like I am always holding off The Beast

Swimming through mental sludge

My head is pounding and my eyes burn

Out in the world I am unprotected

I need to find a private space

Being alone is the only cure

Finally I am home

Worn down and empty

I find myself in bed early

Rolled tightly in blankets

Soothed by darkness

Maybe if I sleep the monster will leave

Sometimes rest is all I need

There are days where nothing can save me

When all my senses begin to run together

Sounds and sights become dizzying sensations

I cannot move but I must

The room is spinning so fast

I make it to the bathroom just in time

as motion sickness overtakes me

I am paralyzed by an indescribable pain

My body and mind stop working together

Getting back to my bed is challenging

So I stay on the floor in my bathroom

Curled into a tight ball

Hiding under a pile of towels

Thinking is impossible

Nothing works

The monster is in control

Total meltdown

Pain and confusion

The Monster has me

Nothing left to do but wait it out

A poem about an Autistic Meltdown.

 

Stop Being Autistic – Stop Being You

Don’t ask me to stop acting Autistic.

I would never ask you to stop being you.

Why can’t you be you and I be me?

You and I are not the same.

I march to my own beat but so do you.

We all do.

Everybody’s different.

No two people are the same.

Misunderstandings and mistakes.

Misspoken words and broken hearts.

Stop being so Autistic!

You are not good enough the way you are.

Why can’t you just be normal?

If only you would try a little harder.

Is that really the best you can do?

You’re too smart for this.

I don’t understand why you keep making the same mistakes.

Slow down.

Be more careful.

Watch what you are doing.

You are so careless.

Stop being so Autistic.

Stop being you.

 

A poem about passing.

 

#SheCantBeAutistic

#ActuallyAutistic

#InvisibleAutism

#InvisibleDisability

A Poem About Sensory Overload / Sensory Meltdown

Squinting in the light

Ticking Clocks

The world is so bright

Everything hums

Shiny daylight fixtures

Killing me slowly

Eyes and brain aching

Stomach turns

I’m not faking

Sounds you can’t hear

Driving me crazy

Can’t tune it out

Can’t make it stop

I close my eyes and rock

Counting to ten

Breathing deeply

Desperately grasping

Trying to hold it in

Looking for a place to hide

The world is spinning

I can’t escape

Hot tears burst

My body burns

Nobody can help me

Let me be

Do not touch me

I need to breathe

Once started

This pain must run its course

Before I sleep

A poem inspired by Sensory Overload / Sensory Meltdowns / Autistic Meltdowns / Sensory Processing Disorder